Paralysis Sucks   Spinal Cord Injury and how to live with it

 

The Phrenic Nerve Pacemaker

You would swear Jeff is breathing on his own. He sits in his wheelchair, the air goes in and out through his nose and mouth, and he talks to you. You assume he is breathing. But, actually, he is not.

A small black box is the brains of a system that operates Jeff’s diaphragmphrenic nerve pacer pacemaker spinal cord injury paralysis paralyzed sci quadriplegia and lungs by remote control. Twelve times each minute, the box sends out an electric pulse through two supple white wires. At the end of each wire is a round flat antenna, stuck to Jeff’s upper chest with tape. Two small receivers have been implanted in his chest. Each is the size of a soda bottle cap. The left antenna encircles the left receiver; the right antenna encircles the right receiver. Each receiver has a stainless steel shielded wire snaking its way to the left or right phrenic nerve, running down the sides of Jeff's neck. When the black box sends a signal, the antennae pass it to the receivers which pass it to the phrenic nerves, which pass it to the muscles of the diaphragm. The muscles twitch, the diaphragm moves, and the vacuum caused by their motion draws air into Jeff’s lungs. 

Twelve times each minute. Or faster or slower, simply by turning dials on the external control box.

phrenic nerve pacer pacemaker spinal cord injury paralysis paralyzed sci quadriplegiaTalk about a liberating technology. Jeff can move more easily throughout the world, and less conspicuously, because most of the bulky, complicated, and scary vent equipment has been stripped off his chair. Jeff can talk more naturally because all of the air passes over his vocal cords. The air is naturally moisturized. And gone is the constant noise from a ventilator machine’s compressor or turbine. Jeff can sit next to you at a movie, and you won’t notice that he is breathing with mechanical assistance.

One morning Jeff's neurosurgeon implanted the receivers, wires, and nerve connections in Jeff's chest and neck during a several-hour procedure at which a manufacturer’s technician attended to provide technical assistance. Believe it or not, it was an out-patient procedure. Jeff was home by mid-afternoon. 

 For more information, visit the Dobelle Institute site.rescuing jeffrey spinal cord injury paralysis paralyzed sci quadriplegia

Some patients are able to survive using their phrenic nerve pacers 24 hours a day. Others can use them only a few hours a day; and some never adapt to the system at all. Jeff was using his 24 hours a day for a few days, but then found it was better to use it only during the daytime. At night when he goes to sleep he switches to his bedside vent machine, a standard compressor model.

 

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